Welcome to BRIAN
BRIAN (the Brain tumouR Information and Analysis Network) is an online app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour. BRIAN will help you - and those supporting you – to understand how you are doing and to make better informed decisions.
BRIAN Features
Here are just some of the features you'll find in BRIAN.
Calendar
See events, treatment & care entries and much more.
Quality of life
Track quality of life, including symptoms and emotions.
Insights
See insights derived from national data sets and user input.
Challenges
Complete challenges on a daily basis to keep your brain active.
Treatment and care
Keep track of treatments, appointments and medications.
Side-effects
Track side-effects felt from medication or treatments.
Questionnaires
Help researchers and The Charity by completing questionnaires.
Tumour log
Record information about tumour(s) and how they change.
Clinical trials
Find clinical trials and track trial involvement.
Benefits
Keep track of benefits and assistance received.
Invite users
Invite healthcare professionals or others to access your data.
Training videos
Watch training videos if you need help with using BRIAN's features.
Is BRIAN for me?
BRIAN has been designed for all kinds of people, whether you are living with a brain tumour, caring for someone who is, or you work in healthcare or research.
BRIAN's tools, like the Benefits Checker and Clinical Trials Finder, offer information that may be difficult to find.
BRIAN's insights provide information about others on the same journey.
BRIAN can help you keep track of treatments, appointments, medications, side-effects and wellbeing.
This information can be quickly and easily shared with healthcare professionals.
You can contribute valuable historical information to BRIAN's database, by sharing details of treatments and quality of life.
Questionnaires in BRIAN provide researchers with even more information.
You can share your BRIAN information with carers, family members or healthcare professionals.
The visualisations in BRIAN help to convey how things have been since the last appointment.
BRIAN supports researchers by granting them access to anonymised user-entered patient outcome and quality of life data.
BRIAN will provide cost-free access to data sets from national healthcare organisations.
How sharing your experience helps
Both NHS Digital and Public Health England have allowed us access to data of brain tumour patients over a period stretching back 10 years. This valuable data has allowed us to produce fascinating insights relating to diagnosis and treatment.
By recording and allowing access to your anonymised data, researchers will better understand people’s quality of life when living with a brain tumour diagnosis. They can also use the collective experiences of patients to drive forward research into brain tumours and accelerate progress towards a cure.
