Register for a BRIAN account below. You'll need a valid email address and details of the person with the brain tumour(s) to hand to complete your registration.
Because BRIAN's reference information is primarily sourced in England, there are some things we'd like to make sure you know:
While recording information in BRIAN, you may be unable to look up hospitals / healthcare professionals in your area, though you will be able to manually enter these in this scenario.
While recording medication information in BRIAN, you may not be able to look up the medicines you expect, though you will be able to enter these manually if necessary.
The information within BRIAN relating to benefits is UK-specific.
The insights and reporting in BRIAN reflect statistics from English hospital records.
We're busy negotiating arrangements with other UK healthcare agencies to access their data.
Coronavirus and brain tumours
If you have a brain tumour and have been affected by coronavirus, you may find BRIAN helpful to track the impact on your quality of life and share this with your medical team, to help them know how best to support you. Similarly, if you are a carer or a parent of someone with a brain tumour, you can use BRIAN to record and share information about their quality of life.
We've added a coronavirus questionnaire in order to gather information on how the disease is impacting our community. By completing this, you’ll help us ensure our support services can provide the right help and guidance for people who are affected or who have concerns.